Showing posts with label Barbara Bush Children's Hospital at Maine Medical Center. Show all posts
Showing posts with label Barbara Bush Children's Hospital at Maine Medical Center. Show all posts

Monday, November 26, 2012

Ronald McDonald House Is A Special Place

Today, in honor of Sidney's third birthday I want to pay homage to what, prior to his early birth, had been a little known organization to me.  I first learned about the Ronald McDonald House of Portland, Maine during the early hours after Sidney's birth when we found ourselves facing the prospect of an extended hospital stay while hundreds of miles from our own home in Norfolk, Virginia.  With no where to stay a hospital social worker introduced us to the RMH and all it offered to parents in their times of need.

Ronald McDonald Houses are the charitable arms of the ubiquitous golden arches chain.  They provide shelter, support, and basic needs for families with sick or hospitalized children.  They are typically located within the vicinity of children's hospitals (Portland's is a mere one block walk away from the Barbara Bush Children's Hospital at Maine Medical Center).  For a donation of $10.00 a day, and even then only if you can afford the fee, families (parents, grandparents, and children) can stay in a private room in a home like setting.  The house isn't fancy but it is a home away from home.  Staffed around the clock by a bevy of paid staff and volunteers alike, as temporary residents we had ready access to laundry facilities, the Internet, home coked meals, and most importantly, a warm bed to come back to each evening.  Volunteers from every walk of life--churches, girl scout troops, high school honor societies, retiree associations, and ordinary citizens provided home cooked meals each evening.  Amid the daily craziness that had become my life, eating was the last thing on my mind but the volunteers made sure each and every one of us ate.  If we didn't want to stay for dinner they packed to-go boxes for us to take back to the hospital.  It was impossible to say "no" to the kind volunteers ensured we had one less thing to worry about.

So as I settled into my room at the RMH, the men in my family--namely my husband, brother, and step-father-- took it as an open invitation to eat as many meals as possible at their local McDonald Restaurants.  I've never been a fan of their food; call me un-American but I find it bland, unappetizing, and it is usually served (greasy and horror of all horrors) to cold.  On the rare occasion I was tempted the long snaking line for the drive through was the additional deterrent I needed.  Because of this it was ironic that I actually found myself waiting in the drive through line early one morning two weeks after Sidney was born. I had been given the go-ahead for Sidney to begin wearing clothes (prior to this he was only swaddled in blankets in his isolette) so I wanted to get him his own outfits to wear so I was making a quick run to Target.  I hadn't eaten yet so the golden arches called to me as I drove past.  As I pulled up to the drive-through window the Ronald McDonald House collection box attached to the window caught my attention.  Just the sight of it took on a whole new meaning to me and I found myself adding a very generous donation to its coffers.

During my one month at the RMH I met a variety of people I would never have met had the circumstances surrounding Sidney's birth been different.  While many of us were parents to premature babies others had children with chronic illnesses; children who were undergoing cancer treatments or awaiting organ transplants; regardless of the illness, the thought of a sick child is heartbreaking and we were all facing our children's illnesses together.  All of us had children who were patients at the hospital and together we were a motley group.  In our own strange way we became our own support group.  With a shared crisis between us, we bonded in a way that anyone who has not had a pre-mature or baby could ever understand.  I was rather a novelty amongst the group;  I was after all "the one from Virginia" (no matter how many times I invoked my own Maine birth, I was still from away), I quickly became the best versed in NICU terminology, and despite the physical distance, I had the best support network of family and friends.

Ever the student, I took copious notes when talking with Sidney's doctors then spent hours on the Internet researching the terminology and what it really meant.  I remember one snowy evening over dinner when I talked to a young dad, who himself had developmental delays.  He shakily expressed his frustration with his inability to understand what the doctors were telling him about his daughter's condition.  I think I was able to provide some clarity but it was in that moment that I realized I had more  in common with this young stranger than I did with my close knit group of suburban friends back in Norfolk. With Glenn back in Virginia working (and likely eating McDonald's), my mom visited several times a week, taking me out for Indian or Mexican food.  The fact that my mom drove over an hour each way to see me on a regular basis took many by surprise.  Several families staying at the house lived within fifteen miles of the hospital but due to their financial circumstances were unable to commute to and from the hospital on a daily basis.  Weekends at the house were often chaotic since families who couldn't visit during the week would come to stay with their loved ones.  I also received regular care packages from friends and family members;  when my in-laws sent me an Edible Creations fruit bouquet, I had children and adults alike swarming around me since they had never seen anything like it before.  As I shared the copious amount of fresh fruit with my housemates, several remarked that they had never had fresh pineapple before.

Some people stayed at RMH for a few nights while others stayed on for months.  There wasn't any limit on how long a family could reside there; if your child was in the hospital you were welcome to stay as long as needed.  I spent a total of twenty-seven nights at RMH and was considered a short-timer.  A few families came and went during my tenure and fortunately for everyone who checked out while I was there, they did so because their babies were going home.  (I know this is not always the case).  Collectively we were quick to welcome and provide support for new arrivals and we celebrated together when families packed up and went home.  We also celebrated each other's milestones and shared in the agony of setbacks.  When one baby girl was downgraded to critical and her tearful mother sat vigil at her bedside the rest of us felt her pain.  I was giddy with excitement when I learned that Sidney had been cleared to be transferred to a Virginia hospital on the same day Glenn was due to arrive in Maine to celebrate Christmas with us.  All of us RMH families celebrated this milestone and upon Glenn's arrival in Portland he received numerous congratulations from complete strangers who, although they didn't know him, knew and shared our story.  It is hard to put into words but the support I received during my stay is what helped me power through that scary time in my life.

Ronald McDonald Houses are truly special places.  It's been a busy three years since my stay at the RMH but they are never far from my thoughts.   I've made cash donations to the house in Portland and while in the States placed food donations in collection boxes at grocery stores.  Yes, I've even patronized a McDonald Restaurant or two and dropped a donation in their collection box.  I've vowed that when we return to the U.S., or to any country that has Ronald McDonald Houses, I will volunteer my time and efforts to support whichever house is local.  I would be honored to be one of those volunteers who provides home cooked dinners and other treats to weary residents.  I remember how much their support meant to me in my time of need and I want to play if forward to others.  This is a season of giving.  If any of you have the opportunity to do the same I urge you to do it.  I can personally attest to how much your volunteer efforts would be appreciated.

Saturday, November 26, 2011

Two Years of Giving Thanks

Two years ago the 26th was Thanksgiving Day. I remember it distinctly because I was almost seven months pregnant and we had driven from Norfolk, VA to Maine for Thanksgiving.  After consulting with my doctor we decided it was fine to travel since, to date, my pregnancy had been uneventful.   I had spent the day before Thanksgiving baking pies for the big day.  I didn't feel well that day but I figured it was because I had been traveling and I was pregnant. I mean, what pregnant woman ever feels well when she is bloated and cranky all the time?

As I went to bed the night of the 25th I suspected something really wasn't right. After a flurry of phone calls back to my doctor in Virginia, Glenn piled me into the car and drove at break neck speed the 1 1/2 hours to the hospital in Portland.  Glenn told me that my doctor was saying it was only a precaution (I was to later find out that she in fact told him that it was critical that we get there).  I grew up driving the route from my mom's house to Portland but I never remember it taking such a long time.  I kid you not when I say it was a dark and foggy night.

Sidney at one week
Three hours later we had a healthy, albeit tiny son who weighed in at 2 lbs 12 oz (or 1.25 kilograms).  We found ourselves as the newest members of a club no one wants membership in- that belonging to the parents of premature babies.  As someone who researches, plans, then executes the most minute event, I was in over my head with the task before me.  We were blessed with the good fortune of being at the Barbara Bush Children's Hospital at Maine Medical Center.  Little did we know but this hospital has one of the best NICUs in the country. The nurses and doctors helped us through the first few hours, days, then weeks as we sat vigil at Sidney's bedside.  They patiently explained each procedure and became an integral part of our lives over the next four weeks.

Thanks to modern technology- i.e. Facebook, friends from around the globe offered their encouragement and support.  Within hours of Sidney's birth- as Glenn and I sat in a dumbfounded stupor in my hospital room, we received phone calls from my sister in Switzerland and our dear friends Chris and Catherine.  Although they were in Japan, they had already heard the news and were offering their support.  Our USS Theodore Roosevelt "family" back in Norfolk began working the phones to make sure we had the support we needed.  Glenn's leave was immediately extended thus allowing him to spend additional time in the hospital with his new family of three.  My friend Victoria, a.k.a. as the Tricare guru, gave me a crash course in advocacy and making the cumbersome military health care system work for us instead of against us.  Back in Norfolk our friends Eric and Gail supervised contractors who were called in at the last minute to speed up the on-going renovations in our home.

After a week Glenn returned to Norfolk and my friends Diane and Lexi put the TR wives to work making sure he was fed in my absence.  My brother and sister-in-law, along with my parents, made regular treks to the hospital to make sure I wasn't alone.  My in-laws flew up from Maryland and friends who couldn't be with me checked in on a daily basis offering me the love and support I needed to get through those difficult first weeks.  

Sidney continued to surpass the doctors' expectations and within a month, and only a few days shy of Christmas, we learned that Sidney was medically stable and could be transferred to a hospital closer to home.  Glenn's CO made sure we would all be together in Virginia by Christmas and on Christmas Eve Sidney was medi-flighted to Portsmouth Naval Medical Center.  

We went through our share of ups and downs over the next seven weeks but found our savior in a wonderful nurse named Rebecca who became Sidney's fiercest advocate.  Our TR family came through once again with hot meals and manual labor to make sure our house was ready for Sidney's homecoming after 11 weeks in two different NICUs in two different states.  Throughout it all Sidney defied expectations and proved to be a little trooper.

The birthday boy with his new ride
Today Sidney is a strong willed little boy who has both the best and worst traits of both of his parents.  Today we celebrate Sidney's second birthday with birthday French toast, qofta (Albanian hotdogs), gifts, and a low key trip to Blur (the Albanian version of Chuckee Cheese).  I wish my dear little boy the happiest of birthdays.  But today, I also extend an enormous thank you to everyone who has provided us with love, support, and guidance over the past two years. We wouldn't be here without you and for that, I invite all of you to share in today's celebration.